Books about young onset

Photo of book cover of Losing Clive to Younger Onset DementiaLosing Clive to Younger Onset Dementia One Family's Story
Helen Beaumont, ISBN 978-1-4310-480-3, 2008, £13.99
Clive Beaumont was diagnosed with younger onset dementia at age 45, when his children were aged just 3 and 4.  Clive's wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died.  She also describes the successful founding and development of The Clive Project, now known as YoungDementia UK. 

 

Improsoned by Love by C S BrahamsImprisoned by Love
C S Brahams. ISBN 978-1913340827 2020, £6.55
Imprisoned by Love is a compelling novel about deputy head teacher, Sophie Boswell. All set to tackle the new academic year at her independent school in London, her husband Michael’s increasingly erratic behaviour begins to take its toll on her and leads to him receiving a frontotemporal dementia diagnosis aged 49.  The novel by debut author C S Brahams, is said to provide an insight into, 'the uncomfortable realities of balancing love and duty.

Photo of book cover Around the World in Many WaysBritish Seaside & Around The World In Many Ways
These two books (both priced £9.99) provide a collection of beautiful images and memory prompts, which are specially designed to aid reminiscence in younger people with dementia.  They contain poems, references to songs, locations, television programmes and much more.  Compiled by those working with and for younger people with dementia, they have been produced as there were no age specific books of this genre for younger people with dementia on the market.  
 

The Memory Book
Rowan Coleman, ISBN 978-0091951375, 2014, £6.71 paperback
The name of your first-born. The face of your lover. Your age. Your address...  What would happen if your memory of these began to fade?  Is it possible to rebuild your life? Raise a family? Fall in love again?  When Claire starts to write her Memory Book, she already knows that this scrapbook of mementoes will soon be all her daughters and husband have of her.  But how can she hold on to the past when her future is slipping through her fingers...?

Our Dementia Diary - Irene, Alzheimer's and Me
Rachael Dixy, ISBN 978-1909339736, 2017, £10.95 hardcover
Based on the diaries of Rachael Dixey who looked after her civil partner Irene after she developed young onset Alzheimer's disease.  When Irene died aged 66, the couple had spent half their life together.  This book is a powerful and moving account of the progression of dementia, and raises serious questions about how our society cares for those who develop the disease, especially at a young age and in the gay, lesbian community.  It also deals with loss and grief, during the illness and afterwards.

Photo of book cover of Coping with Early Onset Dementia Coping with early onset dementia 
Jill Eckersley, ISBN 978-1847091307, £7.99
Around one in 1000 younger people (under 65) in the UK are living with dementia, about one-third of whom have Alzheimer's.  These conditions are sometimes misdiagnosed as stress or depression. Younger people have particular difficulties, such as work, dependent children, and financial commitments.  They may be physically fit and have to deal with lack of understanding and social stigma caused by 'odd' behaviour.  They may find it hard to cope with losing their faculties at such a young age.  They may not know where to turn for help - or even if specialised help is available.  This book will provide some of the answers.

Inside the O'Briens
Lisa Genova, IBSN 147671777X, 2015, £7.37 paperback
Joe O'Brien is a Boston cop; his physical stamina and methodical mind have seen him through decades policing the city streets, while raising a family with his wife Rosie.  When he starts making uncharacteristic errors, he attributes them to stress.  Finally, he agrees to see a doctor and is handed a terrifying, unexpected diagnosis: Huntington's disease.
 

 

Photo of book cover of Still Alice

Still Alice
Lisa Genova, ISBN 978-1849838429, £6.55 paperback 
When Alice finds herself in the rapidly downward spiral of Alzheimer's disease she is just fifty years old. A university professor, wife, and mother of three, she still has so much more to do - books to write, places to see, grandchildren to meet.  But when she can't remember how to make her famous Christmas pudding, when she gets lost in her own back yard, when she fails to recognise her actress daughter after a superb performance, she comes up with a desperate plan.  A fictional story, with excellent reviews. 

Young Onset Dementia
Hilda Hayo, ISBN 978-1785921179, £15.43 paperback
The book provides key information and insight into the experiences of people living with a diagnosis of young onset dementia.  The book aims to increase the knowledge and skills of health and social care professionals in the early recognition, diagnosis and support of young people with dementia and their families.   

 

Alzheimer's Not Just A Memory
Angela Hogarth, £14.99
Angela was 44 when her husband received his diagnosis of Alzheimer's.  They have two children.  The book is an account of the feelings and thoughts she experienced as her husband's carer, the deterioration of his health and the effects it had on their family life. During that time Angela wrote things down in a journal as a form of therapy. The book is based upon this journal which covers the eleven years that Alzheimer's affected them as a family. Order via Amazon, Ebay or email angelasbook@outlook.com

Picking Away: Mum's journey through frontotemporal dementia 
Robert Perry, 2018, £0.00 Kindle e-book
Robert's mum was diagnosed with frontotemporal dementia in 2011 at the age of 52.  Robert looked after his mum for two years and has created a book about their experience using a collection of blog posts he wrote at the time covering diagnosis, daily care and his mum's final days.  

 

White Knight: Living with Alzheimer's moment by moment
Wanda Proost, ISBN 978-1494370329, £10.21
Joe and Wanda found each other in midlife. Deeply in love, they'd just bought their new home when Joe's diagnosis of young onset Alzheimer's changed everything.  White Knight recounts the couple's four-year journey through Alzheimer's, a journey that ended with Joe's death.  Wanda discovered living in the moment helped her enjoy and cherish the limited time she had left with the man she loved. By dedicating herself to filling Joe's remaining days with as much laughter and love as possible, Wanda found strength and purpose.  

Anna and the Beast: The true story of a young mum diagnosed with dementia, aged 37
Christine Reddall, ISBN 978-1913719036, £14.99
Anna was a dedicated and talented nurse, a beloved wife, daughter, sister, friend and the 37-year-old mother of two young sons when she was struck down by a devastating form of dementia, behavioural variant frontotemporal dementia.  Anna’s mother Chris, who is also a nurse, charts the harrowing story of the last five years of Anna’s life including the battle to secure a diagnosis and then find care for her daughter as she deteriorated.  It is a true story of young dementia - the hurting, the breaking, the conflict, and ultimately the healing.

 

Unbreakable Bond
Adam Sibley.  ISBN 978-0993421907, 2015, £2.69 paperback
Adam spent four years caring for his mum when she developed young onset dementia at the age of 51.  Before she passed away in 2013, Adam promised her that he would write a book about their experiences.  'Unbreakable Bond' is a book about our journey,' says Adam.  'What we learnt and how it made us feel.  I sahre my thoughts, opinions, and advice for anyone out there who is caring for a loved one who has dementia. 

 

Photo of book cover of John Suchet's book, My Bonnie

My Bonnie
John Suchet, ISBN 978-0007328413, 2011, £8.19
John Suchet is an award-winning British newsreader, television presenter, author and radio show host.  Most famous for being a newsreader for ITV News, John worked for the channel for 32 years.  His wife Bonnie was diagnosed with Alzheimer's disease in 2006, in her early 60s.  'My Bonnie' is a heart-rending and uplifting read, alternating between Bonnie and John’s intense love story and the progression of the illness.

 

If you can recommend any other books specifically about young onset dementia, please do email us the details so we can add them to our listing.

Share this page